Tuesday, October 27, 2009

A Downdate

O.K. now this totally sucks! I have Psoriasis. Recurring. chronic. Immune system disorder. Question is did the two different reactions to those two anti-biotics have anything to do with it? After all, each one fouled up my immune system for weeks and there was no time at all between them. Now I get to look forward to my skin going haywire here and there as it chooses, coming and going as it pleases for the rest of my life. Nice. Red patches with peeling silver scale. Fun. Itching and peeling and oozing. Just ducky!

Bad things: Possible disfiguring lesions on my hands or face where the public at large can see them. Possible discrimination during those times due to fear of contagion. People with psoriasis are turned away from restaurants, beauty parlors and pools. They lose jobs. The old Biblical "unclean, unclean!" Leprosy is actually easier to treat in this modern world than Psoriasis. Psoriasis has a lot of variables. Every person is different. Symptoms, triggers and treatments vary widely. What works for one patient will make another worse. Psoriac Arthritis. A rarer form of the condition. Hopefully really and truly rare because I sure as hell don't want it. It is a chronic degenerative joint problem. They compared it to rheumatiod arthritis, which I have seen and it is awful.

Just the idea of itching more and more often. Having to toss all my pretty toiletries because I can't use them. The thought that I may have thin dull hair for the rest of my life when my hair has always been thick and nice. The discomfort, occasional burning or stinging. Ointment and lots of it.

Good things: Just because it can happen doesn't mean it will. I also don't have to lie down and take it without fighting. Dead Sea Salt can help, which is cool. I kind of like having short hair. I get all new toiletries. They aren't quite as fun, being fragrance free and not in pretty packages but I can deal. There are online support groups where you can post questions and get opinions. Cats and dogs don't care if you are red and scaly so my animal friends won't mind a bit. Maybe I'll tell people I have sand trout. "My skin is not my own". hee hee.

1 comment:

The Moody Minstrel said...

That is serious suckage! But it's not altogether without precedent.

Taiki has had atopy complete with eczema and asthma off and on since he was a baby. Since no one in Kiharu's extended family has ever had anything like it, I always assumed it came from my side.

After all, I've always had a tiny rash patch somewhere on my body for as long as I can remember. It'll last for a few years and then heal only to reappear somewhere else and continue the cycle. And if there is a period of time when I have no rash patch anywhere, I start having hives pop up at random all over until a new patch appears somewhere. I apparently have to be itchy somewhere.

Yeah, we deal with it, and we get on with life. What else is there to do?